Create a Letter of Intent for Your Child's Special Needs Plan

Jeff Vistica
August 28, 2023

A Letter of Intent (LOI) for a special needs plan is a crucial document that outlines the wishes, preferences, and instructions for the care and well-being of an individual with a disability.

It’s a comprehensive and detailed document that guides caregivers, family members, and professionals who will be responsible for the individual's care if the primary caregiver or guardian can no longer provide care due to unforeseen circumstances.

While not a legally binding document, a well-constructed LOI is a roadmap for ensuring the individual's unique needs are met, enhancing their quality of life, and maintaining continuity in care.


A well-structured LOI includes guidance that addresses various aspects of the individual's life, needs, and preferences. While the specific content may vary based on the individual's circumstances, some standard components include:

Personal and medical information: The LOI should provide detailed personal information about the individual with a disability, including their full name, date of birth, medical history, and any specific diagnoses or conditions they have. It's essential to be as detailed as possible.

Family and support network: Identify the individual's immediate family members, as well as any extended family, friends, or support network that plays a significant role in their life. Include contact information and details about each person's relationship.

Daily routine and preferences: Describe the person’s daily routine, including their choices for activities, meals, medications, and sleep patterns. This information helps caregivers maintain consistency of care.

Medical care: Provide a comprehensive overview of the person’s medical needs, including medications, treatments, therapies, and any specialized medical equipment required. Specify healthcare providers, contact information, and preferred hospitals or medical facilities.

Financial and legal information: Include information about the person’s financial situation, including bank accounts, insurance policies, and any special funds or trusts for their care. This section can also cover legal arrangements, like guardianship arrangements.

Housing and living arrangements: If applicable, describe the individual's living situation and their preferences for housing, whether staying at home with assistance or residing in a specialized care facility.

Education and work: Outline the individual's educational history, preferences, and any special accommodations they require. If the individual is employed or engaged in vocational activities, provide details about their job, workplace, and any necessary support they may need at work.

Social and recreational activities: Highlight the individual's interests, hobbies, and social activities.

End-of-life wishes: While a difficult topic, addressing end-of-life wishes and preferences is essential. If applicable, include any instructions regarding medical decisions, funeral arrangements, and organ donation.

The importance of creating a LOI

Creating a Letter of Intent for a special needs plan offers several significant benefits that contribute to the individual's well-being and peace of mind for their caregivers and loved ones.

Here are some additional reasons why it’s essential to create one.

Ensures continuity of care: One of the primary advantages of an LOI is that it helps ensure the continuity of care for the individual with a disability. Suppose the primary caregiver or guardian can no longer provide care due to illness, disability, or death. In that case, the LOI provides clear instructions and insights into their needs, routines, and preferences. This reduces the risk of disruptions in their care and helps new caregivers or professionals seamlessly step into their roles.

Individual-centered care: Everyone with special needs is unique, and their care should reflect their distinct personality, preferences, and requirements. By detailing their daily routine, medical conditions, communication style, and personal preferences, the LOI empowers caregivers and professionals to provide personalized care that enhances their quality of life.

Reduces stress and uncertainty: Unforeseen circumstances can bring about stress and tension for individuals with a disability and their caregivers. Having a comprehensive LOI in place offers peace of mind to all parties.

Facilitates communication: A well-structured LOI is a valuable communication tool among family members, caregivers, healthcare providers, and professionals involved in the individual's care. It minimizes misunderstandings and ensures everyone is on the same page when meeting their needs.

Advocacy: Creating an LOI allows the primary caregiver or guardian to strongly advocate for the individual with a disability. It helps ensure that their voice is heard and their wishes are respected, even when they cannot communicate or make decisions themselves.

Supports financial and legal planning: The economic and legal aspects of caring for an individual with a disability can be complex. Including details about financial accounts, insurance policies, and legal arrangements in the LOI provides a comprehensive overview of the individual's assets and protects their economic well-being.

Adaptable and updateable: A well-constructed LOI is not a static document; it can be updated over time as the individual's needs and circumstances evolve.

A gift of love and care: Crafting a Letter of Intent is a tangible expression of love and care for a person with a disability. It demonstrates a commitment to their well-being and future, even when the primary caregiver cannot be directly involved in their care.

Life's journey brings many challenges, and navigating the path for a child with a disability can add its unique twists and turns. Writing a LOI is more than a legal formality; it's a heartfelt expression of your hopes, dreams, and practical wisdom for the future. It's a roadmap, guiding those who will walk in your footsteps, ensuring that the path for your child continues to be filled with love, care, and understanding.

At Vistica Wealth Advisors, we have vast experience with LOIs for children with disabilities and all other aspects relating to their care.

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